Charcot-Marie-Tooth Association

The mission of the Charcot-Marie-Tooth Association is to generate resources to find treatments and a cure for CMT, create awareness about CMT and improve the quality of life for those affected by CMT.

2017
CMTA’s Dolphin Odyssey and Teen Luau Sponsored by the Dralla Foundation

At the first CMTA’s Dolphin Odyssey and Teen Luau sponsored by Dralla Foundation put on by Charcot-Marie-Tooth Association, the participants were divided into teams and embarked on a treasure hunt that ended at the handicap accessible van that took them to their first adventure–swimming with the dolphins at The Miami Seaquarium in Key Biscayne, Florida which offers children with disabilities the chance to have a dolphin encounter.  The visit to The Miami Seaquarium included a killer whale show, a shark aquarium and a manatee feeding pool.  During a post-swim afternoon snack and rest period, CMTeen Leaders Bethany Meloche and Jonah Berger led a meaningful dialogue with the group about living with CMT.   These conversations are often the first that participants have with others with CMT, giving them a voice about their CMT, making them feel celebrated instead of belittled, accepted instead of ostracized.  Then group then traveled to The Ritz Carlton Bal Harbor hotel for dinner and a beach party. The entertainment was provided by Ritz Kids, the on-site teen club, and which included dance music, games and activities geared toward adolescents and teens with disabilities.

Testimonials
"Before March 18, I had never met anyone else like me. Meaning, I had never met anyone who wears big chunky braces, falls down and faces the other terrible and unique challenges of CMT. Swimming with the dolphins at the Miami Seaquarium was great, but meeting other people who share my disease was even better."
Erin Black
"We got to meet a dolphin with scoliosis, Luna. It was inspiring to see a dolphin work hard to overcome a disability and try hard to jump out of the water and do the best she could. Luna reminded us all that even though we have a disability, we can still do what others do even though we might not be the best."
Maddie Leard
2012
Celebrations

"Celebrations", sponsored by Dralla Foundation, brought together the CMTA’s support and action group facilitators for a fun-filled evening of genuine relaxation, laughter and fraternization. Facilitators from across the US and Canada delighted in a celebratory soiree, awarding each individual recognition, thanks and gratitude for unremitting and persistent work on behalf of the CMTA and the global CMT community. The evening included a specially prepared meal, ice-breaking and team-building activities, entertainment, music and numerous interactive and confidence-building undertakings. It was for our facilitators a night to remember, an evening where each had the opportunity to thrive, network and collaborate with fellow facilitators, while encouraging growth, friendship and cohesive relationships in a safe and nurturing environment.